disappointment

When my husband and I found out that we were expecting our third child, we were very excited. One of the joys of expecting a child is sharing the news with friends and family. Unfortunately, instead of hugs and congratulations, we received critism and half-hearted blessings. It was disheartening. By the time I shared the news with my co-workers, I was in tears. This baby was making his or her way into the world and we felt very alone in our joy. The scarce number of people who were sincerely happy for us was not enough to extinguish the guilt and sorrow we were beginning to feel. It was not what I wanted or expected when announcing a pregnancy. My husband and I may have took the hard road to find each other but we had a strong marriage, probably because of it. We had problems concieving our first child but were eventually blessed with two boys. We also worked hard to care for our family. The doubt about our third pregnancy was surrounding our disabled son. We were met with questions and disappointment as if we never considered what it meant to bring another child into the world while navigating the issues related to raising our disabled son. We were treated like the pregnancy was completely unplanned and the decision to expand our family was rash. I will never forget how the reaction put a dark cloud over my excitement.

Our disabled son was two when we conceived our third child. I was told by my doctor that we should consider having another child if it was something we may want to do in the future. I had health issues that could possibly halt a chance to get pregnant again. When faced with this information, we considered all of our options. Yes, raising a disabled child had it’s difficulties but we had decided that we wanted him to be a big brother, even before his diagnosis. We also weighed the risks and benefits to having an infant in the home. We knew we had to be careful allowing him around a baby because he didn’t fully understand how to be gentle and boundaries were something he was struggling to understand. We knew his health issues took our time and resources. We also knew the mutual benefit of having another child in our home would be for our disabled son and another child. I realized with some sorrow that a new child would most likely surpass his cognitive abilities but with that would be a chance for him to have a playmate close to his cognitive level. After discussing and weighing these risks, benefits, and more, we carefully made our decisions based on what we desired for our family. Neither of us wanted to let his disease also take away the joy of expanding our family. It had already taken so much. We didn’t want him to grow up knowing he was the reason we never had more children. How did we know he would not enjoy the company of another sibling? We didn’t. We decided another little person would join our sometimes crazy, chaotic family and we trusted in something bigger than ourselves to help us if it became difficult. We had to ignore the nay-sayers and be happy about the decision we had made because it was best for us. I wish we would have felt supported in our decision. Instead, we were explaining why we came to this conclusion to people who really had no true understanding of our family. We felt like we were two teenagers trying to explain our unexpected pregnancy instead of a married couple announcing a joyful pregnancy. In hindsight, no one would have got the lengthy explanation we were giving, we would have asked for the respect and support we needed. We would have to let time prove we were strong enough for the challenge.

It’s three years later and we have no doubt that we made the best decison. We were also surprised with a fourth child. We had decided to stop at three and elected to have surgery to help with my health issues. It was a week before my scheduled surgery date when our youngest daughter snuck in under the radar. We were met with the same skepticism by the same people. Yet another announcement was shrouded in gloom due to the lack of understanding. Most people waited for our reaction because they knew another baby would take more time and resources. My husband and I were once again elated to have the opportunity to bring another life into the world. I think some people would rather try to be a voice of reason than that of support and it’s sad. Sometimes it’s needed but not in a situation such as this. No good was going to come from criticism. No matter what, the baby would arrive in several months. Sharing doubt and disappointment would only make the critics feel better about themselves. It didn’t do anything but snuff the joy out of our announcement. I would hate for anyone else to feel the way we did.

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I wrote this post because the question of having more children after a disabled child comes up in support pages often. I wanted to offer my advice and share our experience. My husband and I knew we had a strong marriage and we supported one another. We knew if no one else supported us, we were okay with our choices. We did what was right for us. We knew our son’s weaknesses and we knew bringing another child into our family was within our capability and within his capability to learn how to interact with another sibling. Our oldest daughter is now his best friend, she tells us often. She sets up his play bowling set in the hallway over and over because she knows he can’t do it himself. Sometimes he yells at her or gets aggravated but she keeps helping. They are mutually learning something from each other. She is learning tolerance and he gets a chance to socialize. My disabled son has just as much to teach us as we have to teach him. He is teaching my typical children that friendship isn’t based on ability or disability. Friendship is time spent together and learning to love differences. They look forward to doing something they enjoy together, like playing pretend bowling. I can only hope his life with us will effect our typical children in a positive way. Maybe they will choose to play with the ignored child at school that reminds them of their brother or they will stand up for intolerance because they have already been taught to meet disability with understanding. I am sad no one else could see what my husband and I did three years ago. It is sad that I will always think of the disappointment others shared instead of joy when we found out my beautiful daughters were going to be a part of our family. I have forgiven but it isn’t easily forgotten (a subject of my next post). If we had decided to stop having children, that decision would have also been made with love. We would have appreciated the same support and understanding with either decision. Being blessed with a special needs child also means taking extra care with decisions for our future. We did consider both paths before making our decision and we respect anyone who faces the same.

If you are reading this and are on the outside watching a family with a disabled child decide whether or not to welcome a new family member, be supportive. Offer an opinion only if you know the situation is dire or if the family asks your opinion. If you are a family member or friend of a strong family who decides having a baby is a good choice for them, don’t be the gray cloud lingering over the parent’s joy. Chances are, that disabled boy or girl will be a pretty awesome big brother or sister and those babies you aren’t sure about will grow up to be tolerant and loving children because of those special circumstances. There is a lot of love in a big family, especially in a big, special needs family. If you have been told that having another child is not the best choice for a special needs family, offer the same amount of support and understanding. Be a comfort if needed. Sometimes deciding to stop having children is a difficult choice and if circumstances were different, the family would love to grow their family. These parents have plenty of variables that weighed in on a their choice. It may not be the choice they envisioned but it is the best choice for them and their special needs child.

In the end, there is no cookie cutter decision that suits every family. There will always be strong opinions on the subject but families have to decide what is best for them. Bringing a child into the world after a special needs child can have good and bad points but it is a choice parents need to consider carefully. Chances are, if another child is announced in joy or a decision has been made to stop having children, they have thought about all the possibilities and it’s best to share in the joy and/or offer your support and leave the criticism for another subject.

*d*

Reply by ~L~

I know I am guilty of the knee-jerk negative reaction and I know that you know that I apologized because after I thought about it, knew I’d hurt your feelings with my thoughtlessness. Not all people are willing to see something from someone else’s perspective but I always try to make sure I at least give it a shot. I didn’t immediately realize that I wasn’t considering it from your angle.

And you couldn’t be more right about the benefits and I know you would never need a lecture about the hardships of adding another child to a special needs family. If everyone had a disabled sibling to grow up with, the world would probably be an exponentially better place instead of the judgmental, intolerant place it can often be.

Your kids are loved immensely, taught well, and being brought up in such a way that they will be good human beings. To me, that’s what really matters.

I married him in the late of summer. He didn’t want to see his bride in sleeveless so I wore a long sleeved white dress in the hot of day. My hair was down, sweltering on my neck. It couldn’t be put up, it wouldn’t have been suitable for him. All the details of that day were as he desired. The floral arrangements, the bridal band, and bridesmaids’ dresses were all in his favorite color. My special color was too feminine for his special day. Everything was suited for a day as he dreamed and we set off for a honeymoon as he always imagined.

This was the first day of the rest of his life. It was the first day ending my independent life. There was no longer a “me” but an us where he decided what was best for the two of us. I was there that day. I stood before the closed sanctuary doors sick with fear. I recalled the day he proposed. I wanted to run then and I wanted to run at that moment. I thought I was in too deep but I was expected to consider his feelings first in all things.

I was expected to relinquish myself and become his wife. In that moment, on that day, I inherited the responsibilities of a wife. I was solely responsible for cleaning, laundry, and meal preparation while remaining physically pleasing and readily available to him. There was no fair turn in the marriage as my attire was rebuked down to my undergarments while he slowly allowed himself a great deal of comfort with his hygiene and appearance. The small requests continued until larger uncomfortable desires were expected to be met with silent submission. After several years I no longer thought about what I wanted, I just did as he asked. My hair was to a length he preferred, my eyebrows were favored at an appropriate width, and money was never at my disposal. He refused to part with the mutual earnings to allow spending that would not be a benefit to him. I worked full time but found myself in tears when making the agonizing choice to purchase much needed items, even if it were for my career. I was also not allowed the security of a cell phone after accepting a job forty miles from home. When my salary met his own, my position was downplayed as subjacent to his own.

I was not perfect but I don’t believe he thought what he was doing was wrong. We both had flaws. I was immature and I had a temper. When my requests to talk about marital issues were met with complete silence, I would blow up in frustration. For him, the only problems with our marriage were the issues I refused to drop. The bad fights started with requests to put down the toilet seat, brushing teeth before bed, or my desire to include my family and friends in my life. For me, marriage became about isolation, unresolved issues and silence. He thought his marriage was perfect. He was shocked when I finally left.

The weeks before I left became littered with fights and broken furniture. One afternoon we had the last fight of our marriage. I left for my parent’s home and he never came for me. He spent his time calling me and asking me to come home or making accusatory calls to me while I was at work. He wanted me back but was angry that I was not doing as he asked. He also had too much pride to follow his wife to the ends of the Earth, or a mere few miles up the road.

Some say divorce is worse than death. I can agree with this on some level because running into an ex can almost be like seeing a ghost. I haven’t seen mine since our disillusion was final. I was thankful we had no children thus making the separation of our lives a clean cut.

You may wonder why this would be the subject of my next post in light of the holiday season. New Year’s Eve fifteen years ago, I was laying on the bathroom floor my ex and I shared wondering if I wanted my life to continue. I heard the laughter from the party going on in the basement beneath and felt it was not for me. Against my natural desire to live grew this terrifying thought grown out of depression. Marriage was not like most things in my young life, it would continue until death. I realized I had no second chance and I should have felt more desire for my husband and my marriage. I had ignored my heart and did what I thought was “right.”

I stayed for a few more New Year’s Eve parties until I matured and made the difficult decision to make our separation permanent. The day I left, I had no idea how I would come to that choice but when he never came for me, it was easier to make. I had to be worth the fight.

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Years later, I married him on a cold spring day in the dress of my dreams (it was sleeveless) and prepared confidently, knowing however I came down the aisle, he unconditionally loved me. My heart and my mind were no longer at conflict.

During the approach of the holiday season, many thoughts turn to resolutions or putting behind a bad year. Isn’t it silly to think the same problems won’t follow through to the next year or resolutions will be easier to keep because we can open another calendar? Making a resolution to run away from problems does not work any better than running from them the remainder of the year. What happened to accepting the year we were given and using the short-falls of that year for our betterment?

My New Year’s advice for you: look back and enjoy this year. Do not be in a rush to discard it. Fifteen years ago when I was laying on my bathroom floor, I lost hope. My life was certainly going to be more of the same disappointment but that disappointment led me to where I am. My husband was worth the previous years I was ready to forget. If I would have known the heartache I experienced would bring me to where I am, I would have met it with more joy. There can be joy in our sadness. Unfortunately we don’t realize all that is meant for us until it has come to pass. Don’t regret an entire year based on difficulty, remember the clay is stronger when burned by fire. The heat may sometimes be intense but it is preparation for many things yet to come. Be patient. True happiness is always worth the wait.

Happy New Year! Wishing you the confidence to make the hard decisions and waiting for the best return the new year has to offer.

*d*

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