This is one of my posts picked up by The Mighty. I wanted to post it here to somehow say thank you to all those who responded with positive comments, sent an e-mail, or prayed for us. It means a lot to me and my family. It has been shared more than I had anticipated, over 4100 times at last check. It’s scary and exciting all at the same time. I am excited to see the diseases in my article getting attention as a cure, especially for my son’s disease, is a huge hope of mine. If you have stumbled across our page after reading this article, thank you for reading, sharing, and helping us spread awareness about Tuberous Sclerosis Complex, Epilepsy (Infantile Spasms), Rheumatoid Arthritis, and Fibromyalgia.
Please browse our page, we hope we are spreading our own bit of hope to the world!
*d*
http://themighty.com/2015/08/why-im-showing-these-private-photos-of-my-life-with-chronic-illnesses/
CrossRoadTrippers 
I thought this was beautiful! I’m Mum to a boy with complex medical conditions (and a daughter) and I have chronic severe illnesses and pain also. I was particularly touched by what you wrote about your relationship with your husband. I have to lean on mine similarly, and whilst mostly I know I’m loved, and we’re in it together, I do sometimes falter and wonder why he stays. Your conclusion that you are loved unconditionally is making me cry, but in a good way. I’m so glad that you have your family, and that you write. I really hope you get some more pain management support- I concur- it’s all kinds of cruel to be in pain constantly. I shall keep reading- so please keep writing!
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Thank you so much for the kind words. I have found comfort in knowing there are others who understand. I hope you find relief from your pain also. Best wishes for your future. *d*
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