A Boy Fading

It’s the first day of school and he is worried about making friends, finding classes, and navigating a world that is literally closing in on him. You are nervous as you watch him prepare for his day even though you have seen him do it many other times. Your son is different. Your son has an invisible disease that is robbing him of his sight. You have to let him go although you know he is going blind. You won’t wave overzealously to him as he smiles eagerly at the stoop of the school. No, you will hide your fear with a haphazard smile and he will crack a cautious grin and wave to you anxiously. You are not sure if you will experience the happy anticipation of hearing how wonderful his day was because his previous school proved to be a terrible experience. You pray a new year and a new school will be the right decision for you both. The question, “Why?” rings in your ears frequently and today is no exception. You know the answer, it’s because he was born with this genetic condition that is stealing his vision. And then that same sickening feeling wells up from your gut and you try to stop yourself from revisiting the same internal battle that steals your sleep. You know the conclusion is always the same, life hasn’t been fair.

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When it comes to children diagnosed with a disability that robs them of any physical or mental capability, it is often hard to see the silver lining. The hard truth remains the same, it isn’t fair. It is unfortunate that in our supposedly accepting society, people often prey upon the weak much like a lion attacks the weakest of a herd. Too many continue to act like animals when encountered with someone who shows the slightest fragility. School should be a safe environment for every child but instead many children are teased, bullied, and excluded based on differences. Parents often have to decide if they want their child to continue an education at a school that is adding unwanted stress to already stressful physical or mental health issues.

Yet, it happens every day and the above llustration is a very certain reality for a little boy living with a rare genetic disease. His name is Avery, he is 10, and he was born with a condition called Retinis Pigmentosa. This inherited disease causes severe vision impairment by retinal degeneration of the eye. During the course of the disease, the cone and rod (photoreceptor) cells die which causes a decline in vision. The landscape of life for individuals with this disease slowly turns into a confined view of reality. Life that was once bright and colorful slowly turns into a channel of black.

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Even his favorite things are fading from view.

Avery is as bright and as inquisitive  as any other child his age. Through it all he has tried not to let his disease define him or what he wants to accomplish. But, Avery’s vision is slowly fading and with it, it takes the spirited independence of a little boy. He no longer rides a bike or a scooter because his disease has progressed enough to make these iconic childhood activities risky. At his young age, he now has to be more cautious because even walking into a new environment creates challenges.

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Sometimes he feels very alone.

And so brings us to Avery’s first day at a new school. He leaves behind students who heckled him for understandable clumsiness associated with his disease, parents who allowed and contributed to the bullying, and impatient teachers. He now has to familiarize himself with a new school, make new friends, navigate a completely different environment, just because he was born with an incurable disease. That is when unfairness is caused by the actions of those who made him to feel unwanted over no fault of his own. Disease and disability are never an elected decision of life, but the unfair treatment makes it seem that way. Teach your children about acceptance. Teach them to love one another regardless of differences. Even a child can be a bright light, and they too can make a difference in someone else’s life. And yes, a bright light for a child whose world is growing dark.

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Avery with his brothers.

If you wish to support this little boy and his family’s difficulty paying for his medical care, please visit their page:
http://www.gofundme.com/uqm3u7f3u

*d*

After The Rain(e)

I was kind of a cute kid.
I was kind of a cute kid.

My middle name is Raine, pronounced just like the precipitation. (My mom’s always been a bra-less, free-thinking, interesting woman, to say the least.) I hated the name when I was a kid—probably until sometime in high school—most likely because it was different. Being different was highly undesirable then. Now, it doesn’t seem to matter. I’ve embraced a great many of my quirks and decided I don’t care what most people think. I understand that a great amount of nastiness in people springs from jealousy and all I feel about that is pity. And the truth is, I don’t remember anyone actually making fun of my middle name. If they found out what it was, I’d get “That’s weird” or “That’s cool” but nothing glaringly negative. It was just the fear of that potentially awful reaction that kept me tight-lipped about my middle moniker.

To this day, when my mom or granny says my first and middle name, there’s a notable southern twang. It’s like it was built into the two-word phrase. My granny was born and raised in Kentucky and for a time, my mom worked there on the horse farms. It’s where the father I’ve never met lived. Where he probably does still.

When I was in elementary school, I remember visiting “down home,” the farmhouse Granny grew up in and where her brother Fred, or Uncle Heavy, as I knew him, still lived. I will always remember the lack of an indoor toilet more than anything. And the fear of sitting over that black hole in the spider infested privy. Now, my memories of him are kind of hazy but one thing that I remember in detail was the way he liked to tease me. I’m sure he picked on me about lots of stuff but what I really held onto was the way he called me Thunderstorm. Lindsey Thunderstorm, instead of Lindsey Raine. I remember constantly correcting him, getting more and more frustrated when he refused to listen. I can hear the growls and indignant retorts now. Even then I was a hothead. Maybe he saw that in me. Maybe he was just trying to get a rise out of me. I’ll never know since he passed away before I was old enough to wonder about it.

Uncle Heavy
Uncle Heavy

What he couldn’t have known was just how stormy I’d end up. Along with some unfounded rage issues, I fight depression. It’s hard to pinpoint when the clouds of this invisible, torturous illness moved into my life but when I think back, I’m inclined to believe it was around puberty. Something changed chemically. A switch was flipped. Couple that with the already tumultuous experience of being a teenager and you have a recipe for some fantastic highs countered with incomprehensible lows.

I was angry. I was sad. I lashed out. I earned another name I didn’t care for. Bitch. The worst part was, I, as well as everyone around me, didn’t see what was happening. I knew I was miserable but I didn’t know why. In the beginning, Mom liked to attribute my moodiness to the birth control injection I’d opted to get as a 15-year-old instead of the pill. That very well helped elevate my misery—as well as my weight, which did nothing to improve my mood.

After my junior year in high school, I dumped the goofy, ponytail-having-boyfriend and switched to the pill for contraception. I felt like a different person, for a while. The clouds never fully parted. It felt like the darkness was always there but as my hormones leveled out, I learned to hide it. More than Geometry, Algebra, or English, I mastered the art of acting. I learned quickly that no one understood why I might feel gloomy and introspective. So, I hid it. But not for long. The driving rain from the storm raging in my head shoved me farther and farther into the darkness.

All I really remember about my senior year was prom, being inducted into the National Honor Society, graduating, and the weight in my heart, the blackness seeping into every corner of my mind. And one other moment. I wore a perpetual frown and often put my head down on my desk in school. “Whatever” had become my go-to response. The once interested participant in class was obviously gone, traded-in for a heavy-sighing, eye-rolling lump. If anyone noticed, no one said anything. No one except my college-prep English teacher. I’d always really liked her, having her my sophomore year as well. She supported my writing and love of books and was a generally fun person to learn from. Senior year that changed. At one point, our CP class had seventeen different projects/assignments we were working on simultaneously. I understand that she was trying to prepare us for college, hence the “college prep” course. But when I learned that the general English students were playing board games during their class time, I was disgusted. I was already struggling to get out of bed every day and her harping and piling on the tasks was enough to make me hate her. My loathing didn’t go unnoticed, even if my depression did. After a particularly snarky reply to some question she asked me, she followed up with: “Why are you being such a bitch?” In front of the whole class. All I could do is shrug and collapse in on myself, staring at my desk.

I know I deserved it. My attitude was terrible. For years after that, I didn’t like her. I eventually forgave her, like I’ve forgiven and continue to forgive those that don’t understand.

At some point during my last year of high school, my mom, having a Bachelor’s in Psychology and a keen perceptiveness, had finally taken me to the doctor, being the only person who realized I might have a problem beyond being a moody teenager. Though I remember very little about the actual appointment—I went kicking and screaming—I know nothing was prescribed. The magic number for receiving anti-depressants is 18. I graduated at 17. When I returned to the doctor in August after my birthday, I was placed on Zoloft. To this day, I find it ridiculous that one day as a 17-year-old I couldn’t have the medication, and the next day as an 18-year-old, I could. It might not have been literally overnight, but the difference was mere months. I suffered through my entire senior year with no help, medically or otherwise. It’s upsetting to think about it now and to realize someone else is probably facing the same thing.

I’d like to say that things got better after high school, that I grew out of the funk so many people assumed I was in. But I’d be lying. And though I’ve gotten so good at lying about how I really am, what I’m really feeling, I’m tired. It’s exhausting pretending you’re fine because trying to explain the pain inside to most people is impossible.

I’ve spent the years since graduation in varying states of depression and on multiple medicines. I’ve hated the detached feeling most of them cause and on several occasions, I’ve stopped taking them. While on them, it’s easy to feel like I’m fine, that I can handle my mentality. But every time I walk away from them, the darkness eventually overpowers me. It’s made it clear that it will never go away.

Now, I feel like I’ve come full circle as I’m back on Zoloft. After a roller-coaster ride of deep sadness, numbed passiveness, the inability to stop crying and crawl out of bed, sexual dysfunction, and sickening withdrawal symptoms, I’ve come back to the first medication I was put on. It had worked well then, but eventually stopped, prompting me to try something new. My doctor put me back on it since 15 years has passed and my body chemistry is completely different now. It’s also good for someone like me who doesn’t want the glaring side-effects or the extreme emotional deadness that some of the other meds cause. Luckily, it’s working well at a very low dose.

The key word here is "less." Somethings never go away completely. ;)
The key word here is “less.” Somethings never go away completely. 😉

The last time I came off of my anti-depressant was terrible. At the time it was a pretty high dose of Effexor. The withdrawal was a delightful medley of dizziness, shaking, and weird flashes in my field of vision. I thought I’d stepped down slowly enough but apparently not.

I was sure I never wanted to go back to the drugs. I was sure I could handle the depression. It was during this time, and the many others where I was trying to be normal, non-drugged, that I had to put on the Academy Award winning performances. No one wants to be around someone who mopes around all the time or has mood swings that would make even a pregnant woman raise an eyebrow. No one wants to hang out with someone who cries all the time. About everything. Broken plans. Being late to an appointment. Watching a Campbell’s soup commercial. So, I would summon all my skills and be someone else.

When Robin Williams killed himself, I’d been off my med for a year and three months. I was struggling. I’ve never actually cried over the loss of a celebrity but the tears welled up in my eyes as I read about his death.

I probably would have cried even if I'd been medicated...
I probably would have cried even if I’d been medicated…

Not just for the beloved actor, so familiar he was like family, but for the man I knew had suffered silently for probably most of his life. My heart broke because I knew why he’d put on the mask. And I also knew why he’d left this life behind him.

Awareness about depression and other metal illnesses is growing, but it still feels like an awkward conversation. It still feels like I need to fake my way through my days and the discomfort of others is apparent when I actually bring up my depression, which isn’t often, for that very reason.

I’m not likely to try to step off of my medicine again. The coming off, the full-force depression that always returns and the going back on, have only gotten more difficult with age. I’m done fighting the fact that I need a pill to chase away the clouds. I realize it doesn’t make me weak any more than a diabetic is weak for needing their insulin.

When I’m on my med, it’s easier, but that doesn’t mean I don’t have moments where the rain clouds begin to gather. The difference is that I can pull out of the growing darkness and make myself refocus. There will always be a part of me that exists in the middle of a drowning downpour but I’ve learned to embrace it, to use it. It’s where my writing comes from—from the deep thoughts and emotional responses. It’s true I’m a more prolific writer when I’m not medicated but needing the medication is something I’ve come to terms with too. I’ve learned that there is no shame in using an umbrella to get through a thunderstorm—that after the rain, there’s often a blue sky.

After The Storm

~L~

Beautiful as a Flower

I love my flowerbed. Around March, I get excited about the endless planting possibilities. My favorite color is pink so I usually find a variety of shades and flowers in my favorite color. As much as I adore the color pink, I also know I can improve upon my flowerbed master piece if I added a few complimentary colors. With creativity fueling my spring time thoughts I forget one thing, I don’t live alone. I have five other people who may interject their opinions and since I want to teach my children to share, I must also share. “Darn it!”

This year when I went to the store where I wanted to purchase the perfect pieces to my creation, the kids also came along. If you have ever been shopping with a kid, you know they either want to buy or help pick something out. On this trip, they wanted to put their favorite picks in the flowerbed and plant them themselves. My oldest daughter won over my heart as she asked to plant additional pink flowers. My oldest son decided he wanted orange marigolds. I don’t like marigolds. It isn’t that I don’t like seeing them, I just don’t like seeing them in my flowerbeds. He wanted the dark orange, as to exclaim, “These are mine!”.

“Darn those orange flowers,” I thought. “Why wasn’t his favorite color green like it once was?” I knew how important this was to all of them so I needed to let go and find a way to make us all happy. Then I remembered something about myself.

While planning my wedding ten years ago my husband and I went to a department store to add items to our registry. The woman helping us was probably old enough to be a grandmother. She was sweet like one until she asked us if we wanted to register towels. I was reluctant as we had already purchased towels for the apartment we would share after the wedding. After some pushing, she won over the approval of my husband to register towels. She then inquired of us what colors we were using in our wedding decor. When I answered, “none,” she got annoyed. I explained that I had seven bridesmaids with seven different colored dresses and I used several different shades of pink for the bouquets. She made me feel like a criminal for not conforming to tradition. I wasn’t going to change because she disapproved. And with that, I registered every variety of color towel I could find.

My son was like his mother, different and not bending to conformity. I planted his flowers next to the walkway leading to our house, they look beautiful. I see how they pop out and exclaim, “Different is beautiful!”

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Think about the sky. On most occasions it’s blue or maybe gray, but at sunset, it is sometimes painted in brilliant colors. Hills and roadways can be lined with vivid wildflowers. These are most picturesque, and yet, they are naturally occurring in nature. My favorite is seeing tiny infants grow into unique individuals with distinct personalities. Nature is beautiful because it is different, and so are we. Whose standard are we comparing ourselves to anyway? Do we really all want the same hair, skin, and shape? That would be like me missing out on the surprising beauty in contrast I found in my little flowerbed and it only took a simple change of heart for me to truly enjoy it.

*d*

P.S. After my grandfather passed away, I framed a picture of he and my grandmother’s wedding. She had four bridesmaids in four different colors. I guess I take after someone too.

A Very Happy Birthday Little Buddy

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It’s a quarter till eight in the evening and three of my children surround my husband in our living room. Each are taking turns blowing out a birthday candle and singing the Birthday Song. My special needs son is singing his very best version of the song and inserting various family member’s names into the chorus. No one is celebrating a birthday today, no one is celebrating a birthday this week but we are celebrating.

My son has struggled with autism for the last five years. For the first two years after his primary diagnosis, he was not diagnosed with autism despite his self-injurous behavior. As he grew, additional autistic behaviors became more evident. It was clear he was having a hard time dealing with the world around him. From a terrible experience at Disney World to family gatherings, he was unable to tolerate loud noises and crowds. Birthday parties were the worst, even his own. He didn’t like singing or clapping and the appearance of a birthday cake sent his anxiety skyrocketing. We decided after many attempts to encourage him to participate, we would leave the room with him during the singing and blowing out of the candles. It was hard for some family members to understand this when we celebrated his birthdays but we found other ways to acknowledge his special day.

Since the addition of a new medication to treat his disease, we have slowly seen developmental progress. He has been on it for over two years and his language has improved, he has gained some understanding of the world around him, and he has been able to tolerate noise and crowds much better. We will never be able to redo our vacation…. but we can help him enjoy those experiences he once missed out on.

Last Christmas my son was six and it was the most amazing Christmas with him yet. He was interested in opening gifts where he hadn’t been before, he was excited about the Christmas lights, and he was able to sing us numerous songs he learned at school. It was a holiday of many celebrations. We also noticed he began to enjoy birthday parties and we were stunned when he refused to leave the room for the birthday song. We expected tension and got excitement. So on his seventh birthday, one he shares with one of his little sisters, we made up for the previous years. He was very excited to open gifts on his own, socialize with family, and blow out the birthday candles after singing the Birthday Song. We sung and blew out the candle six times. He was excited each time.

Disability can take these kind of moments away, little moments most people may take for granted. Experiencing these once seemingly unobtainable moments is where I find joy. I cried when I watched him independently write his name, watched in amazement as he sat peacefully playing with toys he has never touched, felt my heart jump in excitement as he ran upstairs to get the Barbie car out of his sisters’ room so he could play with them. It’s those moments when I can let go of the worry and see the little boy under the disease. It’s the little boy who likes the color purple, who loves trucks (he was recently able to verbalize this to me), enjoys watching and playing bowling, loves everything Barbie, and is wonderful just the way he is. It’s time for the world to stop pointing out the same mundane differences. Experiencing deep joy with someone usually happens when we accept and celebrate one another just the way we are, even if it means celebrating the little things that give us that joy together. Happy birthday little buddy!

*d*

My Craft Wife

It’s a pretty helpless feeling watching someone suffer physically and being unable to do anything to make them feel better. You can speak all the encouraging words you know but it doesn’t do a thing for the actual pain. I’ve been witness to the premature wreckage of my mother and more recently, one of my best friends and co-author of this blog.

Mom has a bad back, neck, and joints among a slew of other issues probably exacerbated by the medication she takes for said back, neck, and joints. I can’t pinpoint when she really started to go downhill but I remember her back and neck surgeries starting somewhere when I was in elementary school. Every year afterward seemed to get just a bit worse than the previous. Then she wound up in an emotionally abusive relationship and spent a great deal of time in bed. Depression knocked her down and when she finally removed the abuser—after 8 years—she’d been sedentary for so long I think it had ruined her. What the boyfriend hadn’t robbed from her quality of life, her Degenerative Joint and Disc disease and immobility had helped itself to. He’s been gone for five years and she is only a tiny fraction of the person she used to be.

And it hurts. Her pain is physical and I can’t begin to understand. What I do comprehend is how heartbreaking this has been for all of us. The pain has robbed her of so much. She can’t keep up after her house like she should, she can’t do yard work, she can’t even carry in heavy groceries. She battles depression every single day and every day she’s able to get out of bed, I’m grateful.

With my history or chronic depression, I know how I would react were I in her shoes. I encourage her and try to help when the chaos allows, but the truth is, I’m weak. I couldn’t handle what she deals with every second of her life.

Now I see *d* fighting the same monster and I break inside. I want to be able to help, to make her more comfortable. I know there is nothing I can do for the physical aspect. All I can do is be there to listen and to try to make her laugh. I know she appreciates my efforts but it doesn’t make me any less angry. She’s not even 35 and so much is being taken from her. We’re the same age. I gripe about a sore back from cleaning houses and she just wishes she could clean her own house. It’s not fair. She’s young and a momma to four kids she doesn’t get to enjoy like she should. Still she stays strong because she has to. Because it’s who she is. Because she is braver than I will ever be.

When she vents to me about the pain, the debilitation, I don’t always know what to say. There are only so many ways to say that you’re sorry. And no matter how literally sorry I am, the word isn’t enough. Not for me.

She is my Craft Wife and I am hers, silly nicknames for two women who love Hobby Lobby and the craft of writing. We also love each other, as great friends who share the darkest parts of their hearts with each other, often do. If I could do anything for her, I would take away the pain. But since I can’t, I will let her know that it’s ok if she’s not always strong. It’s ok to feel the anger and sadness and mourn for the things she’s missing out on. It’s alright to feel robbed. She’s handled every curve ball life’s thrown at her with a grace that I can’t begin to emulate and she deserves to fall apart from time to time. She has people who love her who will scrape her back together to face another day. And as long as I’m around, someone who will whisk her away for greasy bar food, conversation, and trips to the Hobby Lobby.

We're a couple of sketchy characters...haha
We’re a couple of sketchy characters…haha

~L~

The Dogged Question

Let me preface this by saying that I love animals and have grown up with a variety of furry friends from pet mice all the way up to my beloved late Appaloosa horse. Children are also acceptable but I am more likely to hang out with your kid if he’s well-behaved. I don’t think that’s an unreasonable request. I’m not an expert on all these creatures, but time and experience has given me a well-rounded knowledge.

That being said, last week I was dog-sitting for a friend. She’s a tiny black Pomeranian—the dog, not my friend—with a summer haircut the neighborhood kids would definitely make fun of if she were people. The dog has always been overjoyed and clingy with me when I visit my friend so we thought she’d be fine coming to spend a few days with her Aunt ~L~. And she was. I mean, sure she missed her mom, but she mellowed out pretty quickly and was a joy to have. Except for that pesky being-a-dog part.

Does this haircut make my head look huge?
Does this haircut make my head look huge?

Dogs are needy and very reliant on their people. I know this, and yet, I’m still amazed by the level of dependence. Don’t misunderstand me! Dogs are great! They’re fiercely loyal and forgiving and make great friends. But I’m just not the kind of person who likes adding more time consumption to my day. That’s why I have cats. They’re easy because most of the time, they could care less if I exist or not. I could be on fire and they wouldn’t look away from the sliding glass door to the patio.

Having basically a furry, adorable toddler in the house made me think about something that often bothers me, sometimes to an eye roll, sometimes to a teeth grinding anger.
Though I’m not a dog person, that doesn’t mean I haven’t had years of experience with family pets and the pets of friends. The same goes with kids. In fact, I find myself equating having a dog with having a small child, especially if it’s a puppy. And this brings me to my point. Dogs and kids are great, but they’re most likely NOT for me.

I’ll be 34 in August. I married Husband a little over two years ago. When we got together, the obnoxious question on everyone’s lips was: “When are you gonna get married?” Once we were engaged, it evolved into: “Have you picked a date yet?” And once I marched down that aisle and Flashmobbed my reception hall (seriously, we did, and it was AWEsome), the question became down right personal: “When are you going to have kids?”

Since I was probably 11 or 12, I’ve felt like I never wanted to have kids. Until I got married, I was only slightly aware that all of humanity was expecting me to want to. That seems a little messed up to me. First, I find everyone’s preoccupation with both my vagina’s business and my uterus’s functionality kind of disgusting. And it takes a lot to gross me out. Ask *d*. But if you think about someone asking you when you plan to have children, you realize what they’re really asking is: “When will you and your husband be having sex in order to make a baby?” See? I could get far more descriptive, as I’ve thought about this quite a bit, but I won’t. Second, it makes me angry when someone hears my answer: “I don’t want kids,” and insists that I do, in fact want them. That it’ll be different when it’s your own kid. I am under no delusions that it won’t be different. Of course it will. I’m not a mother but I’m also not an IDIOT. What really makes my jaw clench (and causes heavy use of italics in my blogs) is the idea that other people feel like they know what I want and insinuate that they also know my body, mentality, and personal preferences better than I do. STOP. IT.

I know myself very well. That’s the beauty of waiting to get married until after I turned 30. I’ve had those 30 + years to get to know just what I can and can’t stand, what I like to do, and where I want to go. The decision to remain child-free is not something I take lightly. In fact, I still mull it over at least weekly. It’s like I’m checking my stats and seeing if this is the week I will change my mind (SPOILER ALERT: IT ISN’T). But I do think about it. I don’t think about it because I’m hounded by so many people (even those close to me who should know better), but because there is part of me that would like to have someone to teach all the things I’ve learned on this speed-bump riddled road of life. I don’t doubt my capabilities to love unconditionally and sacrifice as a mother should. But I also understand that I like the way my life is and that I am selfish and wish to stay that way. At least when it comes to devoting time to a kid. Hell, I don’t even want a dog. I’m not going to do what everyone expects when I know it’s not right for me.

If my plan changes in the near future (‘cause let’s face it, it would have to happen soon since I ain’t getting’ any younger), it will have nothing to do with the harping and nagging of others who harp and nag even though it’s not their bodies or lives that will be altered.

How offended would you be if you had children and I told you shouldn’t?

Yeah. That’s what I thought.

Perspective could save us all…

~L~

The Road of Suffering and Honesty

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There have been plenty of times when I have wished I could be someone else. This usually happens when the “envy monster” whispers in my ear, “Look who has it better than you,” or “They have it all!”  and I get the feeling in the pit of my stomach that groans about how life has been unfair to me. It’s hard when I hear when these same people have purchased a new car or won the lottery and the only “lottery” I feel we have won is that of incurable and obscure diseases. While other parents think about vacations, taking kids to practice, and play dates, we may never afford future vacations, I am often debilitated due to my Rheumatoid Arthritis, and I have to consider my son’s medical and behavioral issues if the rare opportunity for a play date arises. I think about illnesses every day. It is consuming and it eats away at my me. Bit by bit, the worry, guilt, and fatigue has at times compiled into depression. It would seem happiness is far fetched on the uphill battle we often face, but it isn’t. I can affirm that I have experienced envy, guilt, anxiety, depression, and sadness at the hands of multiple diseases. They have robbed me of sleep, peace of mind, and the luxury of quick decisions. Everything in our life has to be carefully thought out and planned. Life is lived one day at a time and we are sometimes barely getting through the day. So why am I so happy?

For one, I live by faith and believe my life has a greater purpose. I believe I have learned to be a better person through all of my suffering. Suffering is inevitable and to many, suffering is pointless but I dare you to consider the contrary. I have had a better look at the lives of others who have suffered around me by experiencing the same. I was ignorant and there was so much I didn’t understand until I also had to experience my life at it’s lowest. It was from the bottom where I could appreciate the strength of people who were experiencing great difficulty. It was also there where I became more aware of my weaknesses and failures and desired to be a better person. I learned how to find strength and happiness in the face of adversity.

It sounds simple but I no longer hold myself to an unrealistic standard. I allow myself to feel envy, sadness, and heartache and it doesn’t make me a bad person.  Too often, I feel like I have to live up to some ridiculous, unspoken standard that says I have to be happy, or at least pretend to be happy all the time. I don’t. Life has been unfair, other people do seem have it better, and there are numerous health issues in my family. The pain is real so shouldn’t the acknowledgement of my own feelings also be real? Once I decided this, I also stopped sugar-coating my response to the question, “How are you?” I give an honest answer and if someone didn’t really want to know, they will not likely ask again. When did it become necessary to omit difficulty out of normal conversation? Difficulty is a part of life. Why should I feel guilty about talking honestly about my life?

I have also put unnecessary guilt to rest. I have spent too much time feeling guilty about things I could not prevent or did not cause. Guilt by its own definition should only be felt when one purposefully does something in contrary to what he or she knows is right. Trying my best is not something I should feel guilty about. Life should not be based on hypothetical scenarios that can’t changed. What’s the point? I also stopped feeling guilty about what I could not do. If life demands that I leave the laundry pile up and the house remain dirty, so be it. My house and my laundry will wait for another day.

On that note, I stopped telling myself that I had to maintain the perfect image. I made myself crazy cleaning house, painting walls, and making everything around me look perfect when I was falling apart on the inside. Yes, sometimes having other areas of my life in order helps me feel better but it should never take priority over my own or the children’s needs.

Lastly, I remind myself that everyone is struggling with something, even those people I envy and people like me who try to maintain that perfect appearance on the outside. Honesty can be very freeing. I appreciate those who are also honest when I ask, “How are you doing?” It helps to know I’m not walking the difficult road alone.

*d*